Tuesday, July 24, 2012

Breakthrough--Summer Overnight Camp For Ken All Week!!!

Ken has gone to summer camp (overnight) for the week!  He was so excited to go!  Ken claims that he is no longer scared of the dark and can handle summer camp...It feels very strange to not have him home this week.  He is having such a good time.

This is a major event in our lives.  If you understand the type of autism Ken had, you would know what a miracle this is. To clarify, Ken is at camp on his own without any support or an aide--he is just like all the other campers.  Pray for the families that are still struggling and cannot do this with their children.  Stem cells have changed our lives.


Wednesday, July 11, 2012

We Had No Guarantee Stem Cells Would Work...

     It has been three years since we decided to treat Ken with umbilical cord blood stem cells (adult stem cells, THIS IS NOT EMBRYONIC).  To remember what our life was like before this miraculous treatment is hard.  We were not sure that the stem cells would work.  All we knew is that the treatment was safe, that there were over 800 clinical trials in the US proving the safety of adult stem cells, and that Matthew Faiella had great results with the same treatment.

     This is a radio interview that aired a few times statewide on a few Maine radio stations, The Maine View, with Ric Tyler.  It can tell our thoughts and fears before venturing into this new, cutting edge therapy for our precious son.

     We were one of the first to do this for autism.  It was scary and exciting. 

...Leave your fears behind and take the path less traveled by
Against the grain should be a way of life,
What is worth the prize is always worth the fight
So, shoot for the stars, regardless of who you are
Do whatever it takes, because you can't rewind a moment in this life
Let nothing stand in your way because the hands of time are never on your side...


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