Friday, July 31, 2009

Adios, Costa Rica!!!!


Ken will get his last adult stem cell treatment this morning. This has been a very exciting trip. It does not seem real yet that we are actully here and able to do this for our would be a miracle. We leave Costa Rica tonight at midnight--another long day of travel. From Boston, we will rent a car. I WILL BE BRINGING HOME A BRAND NEW BOY--can you believe that?

Thursday, July 30, 2009

Could this be true???

This is a six year old girl who had an adult stem cell transplant for sight. Please watch, this is just amazing!!

This is the before video

Here is the after video, OMG

Today Is Kenneth's Third Treatment With Adult Stem Cells!

Today is Ken's third treatment with the adult stem cells. We have not seen anything new, yet. The stem cells take 24 hours to attach and multiply. It could take six weeks to six months before we see anything new. One girl who came here six weeks ago with her non-verbal son says that her son is now actually saying words--for the first time since his MMR vaccine at 18 months!

We will attempt to drive to the beach today. Yesterday my life flashed before my eyes as we drove to the rain forest. I made Donald turn around, the driving was so dangerous, with big trucks speeding/passing.

Someone just came up to Ken in the lobby and asked him to be quiet (hehehe, you know where this is going). He told her to, "SHUT UP!!!" lol. She told Donald that he had a monster (not to be confused with Monster-line, who is in Maine at Grammy's). I feel bad for these poor people who comment and then we try to politely explain that he has autism. I think Ken is still chasing her around the lobby...

Wednesday, July 29, 2009

Costa Rica is fantastic (GET ME OUT OF HERE)...It is so amazing what they are doing with these adult stem cells. There is a man here to have an adult stem cell transplant for hearing. We have met such nice people, most here to treat MS, some are staying a month for treatments. Donald is a wild man, he is now Spanish and can leap a tall building in a single bound with our rental car...

Kenneth is talking in more complex sentences. It is hard to say what this is from at this point. I tend to not think that it is the stem cells. He will ask Philip questions, like, "Ok, Philip. I want 100 black puppies and I am going to name my puppy Blacky. How many big black dogs do you want? One hundred, two hundred, or what? What are you going to name your black dog?"

Then, he will look at Philip until he gets an answer. He is so interested in what Philip will say. It is really cute.

Tuesday, July 28, 2009

Hola From Costa Rica!

We are in Costa Rica and Kenneth will be getting his first adult stem cell injection this morning. I wanted to list a few of his symptoms so that we can get a better understanding of his progress.

Kenneth Kelley, age 8



Giggles/Silly/Inappropriate With His Brother Or New People--will show off, be loud, obnoxious, demand attention, scream, jump on furniture, throw things, crawl on the floor, get under furniture, take off his clothes, get under the seats on the school bus

Runs around, destructive--will throw things on the floor when insulted or run away into the woods outside--sometimes will take baby sister with him and lead her to the road while laughing
Screams very loudly, will scream from morning until night, thinks it is funny--likes it when you respond negatively to the screaming, encourages him to scream louder and closer to your face

Screams and is uncooperative while being dressed--it is very hard to dress him because he screams so loud. This is very painful and my husband and I have headaches everyday from his screaming. We have to wrestle him to get him dressed. Also, we have to chase him throughout dressing him, as he bolts out the door every 5-10 seconds.

Very smelly bowel movements. He urinates and has bowel movements in his diaper.

Kenneth has started hitting my husband and his older brother. He will not stop fighting. He often yells at family and strangers to "shut up". This happens every half hour through out the day


Kenneth has the vocabulary of a four year old. He can talk, but it is difficult for strangers to understand him.

Some questions, he does not understand like why, when, or how questions.


Kenneth's body is the size of a five year old.

Wednesday, July 8, 2009

Autism Biomedical Support Group

Autism Biomedical Support Group: The first meeting will be held at 993 Pushaw Rd. in Bangor on July 18th at 10:00 a.m. Topics of discussion will include: The Defeat Autism Now! approach. Parents will learn from each other while sharing their experience recovering their children from Autism, PDD, ADHD, Aspergers and NLD.

The first meeting will feature: Laura Plourde, a mom from the Portland area who has recovered one son and is currently treating another. Plourde works with Dr. Fredric Shotz, a DAN! certified doctor, at Maine Integrative Wellness. She runs a biomedical support group in the Portland area and is an Autism Recovery Coach for parents using biomedical interventions.

As a group, we are here to encourage and empower parents while exploring avenues of recovery through research and experience. Everyone is welcome including children. For more information call 942-2459
Here is some information about Coconut Water:"It's a natural isotonic beverage, with the same level of electrolytic balance as we have in our blood. It's the fluid of life, so to speak." In fact, during the Pacific War of 1941-45, both sides in the conflict regularly used coconut water - siphoned directly from the nut - to give emergency plasma trasfusions to wounded soldiers. *Coconut Water is More Nutritious than whole milk - Less fat and NO cholesterol! *Coconut Water is More Healthy than Orange Juice - Much lower calories *Coconut Water is Better than processed baby milk- It contains lauric acid, which is present in human mother's milk *Coconut water is naturally sterile -- Water permeates though the filtering husk! *Coconut water is a universal donor-- Its identical to human blook plasma *Coconut Water is a Natural Isotonic Beverage - The same level we have in our blood. *Coconut water has saved lives in 3rd world countries thru Coconut IV.

Mild Hyperbaric Oxygen Therapy

One of the first therapies we tried was the mild hyperbaric oxygen chamber. Dr. Neubrander had his brother, Rick, fly to Florida to train us in this chamber. After just six hours of training, Ken went to school and traced the alphabet from A-Z by HIMSELF for the first time in his life. This was just the beginning of all the amazing things we would see with the chamber. We spend three hours a day in the chamber during his sessions. In a two years time, we now have over 700 hours. This has been a great therapy for Ken!


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